An assortment of thingies makes a thingy

[kiya]

I may get aura-only migraines now? I don't know? I haven't gotten the serious pain ones frequently since I stopped trying to work business hours so I thought they'd abated but maybe I just get the weird shit without the pain? This thought brought to you by yawning so hard this morning I saw the flashy blue sparklies that are usually attached to brainsplitting agony, and also asking jenett.

But it might explain why I haven't been able to force myself to eat much for the last few days, because there has been no appetite and also just augh. I have applied calories, but rather grudgingly. And my concentration has been entirely ass, as they say.

Today sucked slugs through a straw. For several complicated reasons that I don't want to get into here because I'm still too deeply hurt by it all to make useful commentary (I have done a lot of venting at someone who can fix the several problems involved and been praised for shouting useful words). I think we have another bottle of cope in the medicine storage, I drained the last of that bottle dealing with the meltdown.

Had a lovely time with Deliria game last night; cancelled running my game today because one of the players is having a political meltdown and while I was recovered enough to run I am not gonna turn down the not-having-to-run-a-game after a day spent constantly on the brink of something.

ER may have grown into sleeping in her own bed though of course now I've said that she'll be in here in twenty minutes.

Comments

[graydon]

I shall hope the cope supplies stay sufficient unto the evils thereof, or thereabouts.

Migraines aren't required to hurt; they're required to make you hallucinate, at least by the taxonomy I encountered. (They mostly do hurt, but the "devours the will" version and the "if a fly lands on me I shall explode into several times my current mass of sand" version both experience medical recognition.)

[kiya]

Yeah, my issue is a parsing one, y'know?

I have thirty-plus years of experience identifying "ah, this is a migraine" when they hurt.

I also have larger than that years of experience dealing with light and sound sensitivity due to nontypical brain wiring, so ... if I'm light and sound sensitive that's normal!

I also have many years of experience dealing with complex food aversions due to autoimmune crap, so if that's a migraine symptom how can I distinguish between that and "my body is attempting to murderate my thyroid" again? Cognition issues respond to the medication for that, but what if other cognition issues? Etc.

I'm left with "well maybe blinkenlights, I guess".

I am feeling rather excessively, and more than usually, poorly constructed at the moment.

[jenett]

With the bonus fun that there's some evidence that thyroid stuff and migraine stuff actually maybe interrelate (or at least that if the thyroid stuff is adequately managed and not flaring, you have fewer migraines.)

And the complexity that there aren't a ton of treatment options for migraine with aura but without pain other than some long-term 'let's reduce triggers' stuff.

(I already recced this to kiya, but my previous doctor had me start on Migrelief, which is a magneisum+B2+feverfew combo. I have discovered recently that no I really do need the pricy version and/or the feverfew actually does something for me, becuase trying the cheaper versions brought back migraines. But it does a lot to keep them manageable except for some weather triggers.)

[graydon]

My experience with straight feverfew was that my tongue went numb and stayed that way for a couple of years. (I was having migraines because I didn't know there were things I absolutely should not eat and the accumulated neurotoxicity from incomplete digestion was getting drastically bad. Treating migraine was not the correct thing to do in my case.)

Migraines as "regulatory system is screaming" has some support as I understand it. Which is nice and all but it'd be great if it would produce some useful treatment options.

Oh, and caffeine; live long enough and sometimes it turns out to be a Very Bad Idea; migraines, disorientation, loss of balance... Why? Nobody has the least idea. I'm pretty sure there are more such substances and no one has a clear idea of which or why or how often because it's only clinically noticeable in the caffeine case because caffeine addiction is a cultural norm so the baseline is hundreds of millions of people.

[graydon]

Yeah, that sucks flint.

Hope things come back into something like balance soon-like.

[madgastronomer]

I'm sorry about the maybe-migraines (although aura-only is better than the pain kind, I suppose), and that you had such a rotten day. Glad to hear you liked Deliria last night, though.

[ivy]

Sorry about the weird shit; I hope it unfucks itself in your favor soon.