Miscellaneous notes now that things are up again.

[kiya]

First of all: lstone, you must come visit and play jikharra's new game. Ninja Bowl. Be a ninja and compete in ninjitude. I'd be more coherent on the subject except I'm really, really, really, really tired right now. Good game. Much fun. Thingy.

Second of all: Insecurity sucks slugs.

Third of all: I am confirmed to have kidneys. Fascinating, testable kidneys, because they're entirely normal except for that one thing. I do not have lupus. Nor do I have other stuff. And the ultrasound is also normal.

Fourth of all: I got nowhere near enough sleep. I become one with the couch.

Comments

[kalmn.livejournal.com]

eeeeeeee!

i am glad you do not have lupus. lupus sucks slugs through a straw. it is no good at all.

however, i am sad that you do not seem to have a diagnosis yet. diagnoses are helpful.

[kiya]

I am also glad that I do not have lupus. Or any of the other things he tested me for, which he did not name or I do not remember, but which, I gather, were plural.

My personal suspicion is that the actual issue is "My kidneys are equivalently out of normal range in function as the rest of my organs". However, the nephrologist wants more tests, and for me to be careful about painkillers. (Which isn't so bad, as I decided a while back that I wanted to go the stoic route for pain by preference rather than the drug one, as if I took drugs every time something hurt I'd be drugged all the damn time.)

So I get regular blood and urine tests for a while to see if the weirdness is stable at its current weirdnesslevel, and see the nephrologist again in a year. And if it's stable with three to four month testing, we go to six month testing cycles. And presumably if it's still stable, just wind up having this as part of my usual yearly checkup for the indefinite future.

If the weirdness becomes significantly more weird, I get a biopsy.

Personally, I'm hoping for "I have a wonky soma." Because I already knew I had that.